Lichen Sclerosis Beating the Disease

A must read for anyone with any autoimmune disease! I've had fibromyalgia since the 80's, and LS that wasn't diagnosed until August of 2015. The best way I can endorse this book is with an excerpt from the email I sent to the author in December of 2015, which is as follows: I went to see my gynocologist this morning. Had to tell him I went off all prescription meds, including the clobetasol and estrogen cream, on October 1st. Not surprisingly, he wasn't exactly thrilled . . . "You do know I'm trying to help you, right? Can't do that if you won't take the only thing that can reduce your symptoms. . . " So then I told him how much worse my legs got after my last appt with him in September, how I couldn't even get up steps without help, how I started slipping into depression and tried to combat it by doing research and joining a support group, and how I discovered your book that way. Explained what the protocol was about, and that I decided I had nothing to lose, so spent all of October ordering the nutraceuticals and supplements and transforming my house & kitchen into a ridiculously over-the-top organic one. He interjected that what you did made good medical sense, because toxicity either causing or greatly worsening auto-immune diseases is getting more and more serious consideration in the medical field. Then I told him I started the healing protocol on 11/7, and since then my blood pressure dramatically dropped, I've lost 16 pounds without doing any strenuous exercise (unheard of for me), my rosacea is completely under control with no meds, my severe muscle spasms have stopped entirely, the intense pressure in my head is completely gone, I sleep far better at night (6 hours in a row the other night! -- haven't done that since childhood), the eczema on the back of my legs and on my chest is gone, and best of all, the fibromyalgia is entirely gone from my upper legs (pounded them to demonstrate their amazing normalcy), meaning that I can now walk as far as I want and run upstairs!, and that it's reduced about 50% from my upper arms. He was very impressed with the list of improvements, but said he doubted it could do much for the LS, and that it was okay with him if I continued on the protocol only if the LS didn't show any signs of getting worse. I said I wasn't expecting any improvement at this stage, but that I also was hoping that it at least hadn't gotten any worse, and if so, that was victory enough for now. So then he examined me and his head snapped up immediately. "OMG, I don't believe what I'm seeing! Not only has the LS receded to only a small spot where the skin is very thin and still slightly white, but there is no inflammation at all, and all the skin tissue surrounding it is entirely normal skin!" Of course I erupted in cheers! He kept shaking his head, saying he had never seen anything like it before, that generally the best case scenario was a reduction in the inflammation, not the skin becoming completely normal. Then he wanted to know the title of the book -- says he's ordering it and will read it, because he has several LS patients who could greatly benefit from it. Needless to say, he completely endorsed me being on the protocol and wants me to see him every three months so he can see how it goes from here. Since that email, I am continuing to improve and have every hope that I will experience a complete cure of both of my "incurable diseases". I now believe that fibromyalgia and Lichen Sclerosis (and probably most other autoimmune diseases) are not only not "incurable", but aren't really diseases. I think they're symptoms, not diseases -- symptoms of a compromised immune system, and that when you eliminate as many toxins as possible from entering the body, and use nutraceuticals to eliminate the ones trapped inside the body, the freed immune system can finally do what it was so excellently designed to do . . . . heal us from within. That is what Ginny's healing protocol is all about, and the proof of it is in those of us who have experienced healing by following it. I could not endorse this book more wholeheartedly. If you have an autoimmune disease, following the protocol outlined in this book is the best possible thing you could do for yourself. You have nothing to lose and everything to gain. At best, you'll experience healing. At worst, you'll be far healthier and better able to deal with your symptoms. If you don't have an autoimmune disease, it's a book full of excellent advice on achieving a healthier lifestyle in a world that is becoming increasingly toxic to our health. Any way you look at it, it's a total winner!

Worried about your health or the health of your loved ones? Do you know what’s in that soap or skin product you use on a daily basis or in the household cleaning products you use every day? Are they safe if they get on your skin or if you ingest even a small amount? How about processed foods and sprays? Is that bottled water safe? What about the food storage containers and cooking utensils you use? Can they be harmful? What are some of the ingredients found in most homes that are not well tested and could be extremely toxic to you? The book Lichen Sclerosis Beating the Disease is an amazingly well-researched book that helps answer many questions relating to your health. You can learn how to begin the healing of that skin problem or to cure that itchy rash as well as a long list of symptoms and “diseases” related to toxic substances found throughout most homes. Want to be on your way towards feeling healthier than you’ve ever felt? This is one book that should be in every home. There is a wealth of information about the foods you eat, where to purchase healthful and healing foods (including hints on how to save money), safe household cleaning supplies (or how to make your own). Ginny Chandoha’s book is well-researched, lists all the sources and includes an excellent index. Her inclusion of Appendixes A thru J contain case studies, recommended reading and videos, healing protocols and healthier products for you and your home, a list of organic food websites and even lists sources for coupons and discounts. Keep this book nearby and you will be well on your way to a healthier life.

This book has alot of information on how to heal.

This book is huge and contains a wealth of info on how this woman beat LS by being very, very vigilant about her: diet, cosmetics, environment, cleaning products, and more. It has lots of info in it, and it is helpful, but I found it overwhelming. I am not ready yet to be as fierce about my lifestyle as she is.

This is the most long overdue review and I apologize for not putting what I have to say out there sooner. Ginny, from the bottom of my heart, thank you. Thank you for changing my life. Thank you giving me, a 25 year old, aching on the couch from a flare up, hope. Thank you for opening my eyes. Thank you for giving me my life back. I can't say it enough. The minute I started reading your book, my life has changed completely. I found your book when I said to myself "You are 25. This is your third flare up where you can't walk without screaming. Your skin has been left with so many scars and damage, who knows if you will be able to live a normal life again. Doctors have failed you over and over again. You can't do this anymore. There has to be SOMETHING that can help". I was desperate for some help and relief. I started reading your book and followed everything you did as I was reading. I practically gutted my home. I became the label reader that I never thought I'd be. Within weeks, my symptoms (burning, irritation, itching) completely disappeared. Within months, my scars, my thin skin, started to plump. A little less than a year after purchasing your book (now), I am not only physically healthier but I am mentally healthier and my life has been restored. I no longer live with pain everyday. I no longer worry about walking far distances or activity restrictions. My thin skin and scars are continuing to heal but I had a severe case and healing takes time. My body is functioning the way it should and my skin isn't angry with me all of the time like it used to be. I feel confident in my skin and my body. I feel like I have been able to find peace and all of anxiety has kicked to the curb. I have also taken what I have learned from you to help my Mom with her Lupus and Vitiligo. I have also taken what I have learned from you to help my Dad with his Diabetes and Congestive Heart Failure. My life, my home, my outlook, my quality of life, my new passion for wellness and a holistic lifestyle, is all because of you. Thank you. I can't tell how enough how much I appreciate the time you put into this book. You are a truly amazing person.

Kudos to the author for explaining all the whys and wherefores of her protocol, but it got a bit too deep for me. The majority of the book is telling why and how everything on earth is bad for us. She does have some valid points, but I think it's a bit overkill. As a previous reviewer said, there is a bit of searching around in the book to actually find the protocol, and what you need to do to follow it. I actually did figure it all out, and proceeded to purchase some of the MANY supplements, etc. required, because I desperately needed relief from this disease. But after purchasing a few things, and beginning to make my own organic soaps, etc, I realized that this is just going to be way too expensive for me! When I received the book, the pages were just falling out, so I returned it, and Amazon did refund me, but I think that I will not purchase it again. Instead, I researched further, and opted to follow the Autoimmune Paleo Protocol (AIP Protocol). Yes, it's a lifetime investment, rather than this protocol which says it's only 1 year, but I believe if you just go back to eating the same way you deviated from in the first place, symptoms are going to come back. So in all reality, both solutions are a lifetime commitment. Overall, I don't think I would recommend this book.

I'm a devotee of alternate medicine. And I have been diagnosed with Lichen Sclerosis. I was excited and relieved to find Ginny Chandoha's book on Amazon. The book itself is encyclopedic in presenting a lot of valuable research information on the disease, the various medications employed, and the alternative treatments that she used. But I would not take Chandoha's account as the only (or fastest) route to a cure/remission. I'd reached page 205 of her journey into organic and all natural products in her efforts to detoxify herself. On page 205, however, she clearly declares that after doing all this, she still had LS. This raises all kinds of questions, because she's still pushing her path as the path to wellness. Chandoha's journey i the journey of a wealthy white woman ascending up the expensive mountain path of shopping her way to health. Realistically, most women cannot afford to jettison all their median priced dry goods and food for high end organic food and personal care products. And after 205 pages of that journey, she still had the illness. I agree that we need to detoxify ourselves for good health and long life, but let's be clear on what a cure is: no more of the horrible white patches that wring us with pain. She did not attain that by going organic. The author also employs numerous fallacies of logic, asking why America is the sickest nation on the planet. America is NOT the sickest nation. Not by a long shot! Slovakia, Hungary, Lithuania, Indonesia, and Niger are the five sickest countries in the world. The USA dos not even make it to the worst 20, or the worst 100. The USA, in fact, remains solidly in the top ten (2021 Global Health Security Index) among healthy nations. She also rants about the dangers of vaccines, as only a non-medically educated person can do. Yes, there are trade offs when employing vaccines. They can be overused. But vaccination has saved the world from smallpox and polio. Chandoha, in fact, like most crusaders who have only their own single experience to rely on and have mistaken it for the on true conclusion, is very ignorant of the history of modern medicine. As an upper middle class white women in America, she can afford to take the time and the money to find her way to a cure. But her knowledge had gaps, and her reasoning is flawed. After page 205, she launches into her recommended method of being cured. I object to her laying out these remedies in such a prescriptive manner. I do think her method worked for her, but that is no guarantee that it works for everybody. She calls it a healing protocol, but in reality it is HER healing protocol. I was just diagnosed last week and have had a reaction to the steroid, Colbetasol. I plan to rely a lot of Traditional Chinese Medicine and a diet that is free of oxylates and highly acidic foods. I have also started monitoring my fatty acid intake and protein intake. But i am turning a jaundiced eye on the numerous expensive "nutraceuticals" that she hawks in her book. The second half of the book, frankly, strikes me as a sales pitch, promising something she has no right or validity in promising: a cure for anybody who tries it.

This book is so complete. It tells you everything you need to know to start yourself on a new way of living that is free from all of the excess chemicals and fillers etc. that you find in the world today. Everything on the outside of your body to the inside of your body is covered. It is fabulous! It is so well written and you can understand exactly what is going on. Very complete and so very helpful. Thanks Ginny